The Expert Advisory Group on Data Access (EAGDA) was established in 2012 by the Wellcome Trust, Cancer Research UK, the Economic and Social Research Council, and the Medical Research Council to provide strategic advice to these funders on the emerging scientific, legal and ethical issues associated with data access for human genetics research and cohort studies. From October 2014, EAGDA is funded equally between the four partners.
The group provides support to current and future studies and, where relevant, their Data Access Committees (DACs), across the fields of genetics, epidemiology and the social sciences – identifying best practice and encouraging harmonisation in governance and decision-making. It also seeks to enhance the UK’s input into international policy discussions on data access.
For further information, please go to the Wellcome Trust website.